Professor Peter Gibbs started work in cancer registries with the colorectal cancer registry in 2009. Over time other disease registries have been developed to collect clinical information for a specific area of interest, and depending on the depth of clinical detail captured, can support a variety of research questions.
Longitudinal follow up within a registry, as well as potential data linkage to other routinely collected data software, eg electronic health records or National Death Index, allows for sound representation of real-world patients.
Real World Data collection in a number of cancers started at the Gibbs Lab in 2000, with colorectal cancer followed by breast, pancreas, gastro-oesophageal, brain, prostate, kidney, bladder, testicular, lung and melanoma.
Most recently head and neck cancers have been added to the collection of real world cancer data being undertaken in the Gibbs Lab.
CRC Accord/TRACC team: Professor Peter Gibbs, clinical support from Doctors Vanessa Wong, Hui-Li Wong, Iris Tung, Matthew Loft and Kate Dunne. project management and study coordination by team led by Michael Harold, Catherine McKay, Sharen Gibbs, Kelsey Serena and team of clinical data officers.
Breast cancer, Tabitha/ARORA HER2+, ER+ breast cancer team: Dr Sheau Wen Lok, clinical support from doctors, Vanessa Wong and Iris Tung. Project management support from Catherine Morton and team of clinical data officers.
Pancreas cancer, PURPLE pancreas cancer team: Dr Belinda Lee, clinical support from Doctor Richard To, Shehara Mendis, project management support from Nadia Ayres, Michael Harold and team of clinical data officers.
Gastro-oesophageal cancer, GATOR team: Dr Margaret Lee clinical support from Dr Grace Gard and project management support from Catherine McKay and team of clinical data officers.
Brain, BRAIN Brain cancer team: Clinical Lead Dr Lucy Gately, project management support from Megan Dumas and team of clinical data officer.
Genito-urinary cancers – prostate (Epad), kidney (KRAB), bladder (BLADDA), testicular (itestis) Clinical Lead Associate Professor Ben Tran with clinical support from Doctors Arsha Anton, Ciara Conduit, Elizabeth Liow and Andrisha-Jade Inderjeeth and project management support from Sophie O’Haire and Kristina Zlatic, Mary Moody and clinical data officers
Lung, INHALE led by Dr Ben Markman with clinical support from Doctor Sam Smith and project management support from Siobhan Gallus and team of clinical data officers.
Melanoma, MASTER lead by Dr Miles Andrews and project management support from Tina Cavicchiolo and team of clinical data officers.
Head and neck, ENHANCE lead by Professor Peter Gibbs with clinical support from Dr Shehara Mendis and project management support from Catherine McKay.
The Gibbs Lab has engaged with over 35 hospitals across Australia, New Zealand and Singapore. More recently we have been engaging with hospitals in South Korea to contribute to the real world data collection of cancer data across the multiple registries. These data registries hold comprehensive de-identified data on thousands of patients that can be shared with our collaborative partners to create large scalable datasets which provides valuable insights into the real-world patient landscape and changing patterns of care across Australia and internationally.
