In March 2023, Michael and his partner Dominique were overjoyed to become parents to a delightful little girl, Pearl. While Pearl has inherited TRAPS, Michael and his partner are optimistic that she can be treated and live a relatively normal life free of symptoms.
In Australia, allergy and immune diseases are among the fastest growing chronic conditions.
The Snow Centre for Immune Health has been established to tackle the major global health challenges of immune health.
The centre will help improve the lives of millions of people with immune, autoimmune and inflammatory disorders – from lupus to those with anaphylactic food allergies.
“Most immune conditions have no cures, and treatments are often limited, especially one as rare as Michael’s. I’m just so pleased we were able to source a drug to manage Michael’s symptoms.
“Through the work at the Snow Centre for Immune Health, we can fast-track how we treat immune conditions. Our goal is to eventually transform the lives of millions of people, like Michael, who are living with debilitating immune conditions,” Dr Slade says.
Co-led by WEHI and the Royal Melbourne Hospital, in partnership with Snow Medical, the centre is bringing together leading Australian and international researchers with a shared mission to transform how we research and treat the immune system—to transform the lives of people like Michael.
–
Header image: Michael Julian, with his partner Dominique and daughter Pearl.