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A journey of resilience

Your donation could lead to the cure that helps save someone – maybe someone you love.

Resilience plays a powerful role in medical research – it drives discoveries, fuels innovation, and ultimately leads to life-saving breakthroughs. But resilience also lives in the hearts of patients and families who face serious illness.

Carlyn Villani has had to draw on that strength not once, not twice, but three times in her life.

This is her story.

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The initial diganosis

In 2019, Carlyn received a call from her mum, Heather. She’d noticed a lump but delayed seeing a doctor until it grew too large to ignore. After some tests, she was diagnosed with Stage 4 non-Hodgkin lymphoma.

Shortly after, in 2020, the first indications that something was wrong with Carlyn’s father, Alan, appeared in blood test results. To understand the extent of the issue, his doctor ordered followup CT and PET scans. These scans first showed that he had fractured a rib, but they also uncovered something far more sinister – multiple myeloma.

“All of this happened during the COVID-19 pandemic, which made everything harder. I was only able to travel to Bendigo to see my dad a handful of times, until he was hospitalised for the last two weeks of his life. I think I emotionally detached. I almost pretended it wasn’t happening, as a way of coping.” Carlyn said.

The news came as a shock, and the family was unprepared for how aggressive the cancer was. Just ten months after his diagnosis, Alan sadly passed away.

Carlyn’s parents, Heather and Alan, with their grandchildren.

 

Carlyn with her husband, Don, and their daughter, Stella.

 

Another devastating diagnosis

Unfortunately, less than a year later, Carlyn’s world was about to be turned upside down again.

In 2021, Carlyn’s husband, Don, noticed a lump and had it checked by his doctor, who dismissed his concerns. When it continued to grow, Don sought a second opinion. Further scans were ordered, and within days he was diagnosed with stage 2 non-Hodgkin lymphoma.

“At that point, I was just angry at the doctor, angry at the universe. I remember saying I must have done something terrible in my past life. How could this be happening again?” said Carlyn.

Carlyn’s daughter, Stella, was only 13 at the time, and she was particularly affected by the news. She had only recently lost her grandfather and was terrified that she might lose her dad as well.

Thankfully both Don and Heather made a full recovery.

From carer to advocate

After this ordeal, Carlyn wanted to give back and help others who were going through a similar experience. She was introduced to the WEHI Consumer Advocate program, where she uses her professional and personal experience to help advance medical research.

Carlyn works with WEHI’s National Drug Discovery Centre (NDDC), which is Australia’s premier facility for small-molecule drug discovery – and the first of its kind in the country. The NDDC helps accelerate early-stage drug discovery, helping researchers find promising treatments faster.

“Medical research at WEHI has the potential to positively impact every single one of us.” said Carlyn.

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Carlyn with her husband, Don, and their daughter, Stella.

Header image: Carlyn Villani (right) and her mother Heather (left).

Other ways to donate

To make a credit card donation by phone, please call +61 3 9345 2403 (9am to 5pm AEST).

To donate by cheque, please download this donation form.

If you would like to make a donation via bank transfer or BPAY, please call our Fundraising team on (03) 9345 2403 or email us at fundraising@wehi.edu.au

If you would like to make a donation via cryptocurrency, please visit our crypto giving page.

To request donation envelopes to use at an event, please contact us on 03 9345 2403 or fundraising@wehi.edu.au.

US supporters can donate via the Chapel & York US Foundation, nominating The Walter and Eliza Hall Institute of Medical Research as a recipient.

Donations to WEHI of $2 or more are fully tax deductible.

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Illuminate Autumn 2026
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