The Walter and Eliza Hall Institute of Medical Research is committed to protecting the privacy of personal information we collect and hold about individuals.
Personal information we collect
The Walter and Eliza Hall Institute collects personal information by lawful and fair means and not in an unreasonably intrusive way. We will generally collect your personal information from you directly. We collect personal information from you in various ways, such as when you communicate with us, if you apply for a job with us, if you provide a product or service to us or when you participate in or attend any of our activities, events or programs.
Sometimes we collect personal information from a third party or a publicly available source if you have consented to such collection, would reasonably expect us to collect your personal information in this way, or if it is necessary for a specific purpose. If we collect any personal information about you from another party, where practicable, we will take reasonable steps to inform you why we have collected the information and how we will use it.
The types of personal information we may collect about you includes: your name, address, telephone number, e-mail address, date of birth, financial and payment details, research interests, event attendance and details relating to recruitment, employment and employment history. We collect information from Institute donors and supporters including contact information, information about your donation history, research interests and any activities that you have indicated you may be interested in being involved with. The Walter and Eliza Hall Institute’s premises and car parks are also under video and camera surveillance and we may collect personal information and images for management, safety and security purposes. Some information we collect may be sensitive information. We will only collect sensitive information with your consent, or as otherwise permitted by law, only if reasonably necessary for The Walter and Eliza Hall Institute’s functions or activities and always subject to the requirements of legislation governing the collection, handling and use of this sensitive information.
We will only collect personal information reasonably necessary to conduct our functions or activities. Where lawful and practicable, you may be given the opportunity to deal with us without identifying yourself or through the use of a pseudonym. However, on some occasions, if you do not provide the personal information we request, we may not be able to work with you, issue tax deductible receipts or you may be unable to participate in or have access to our research programs, events and activities.
How we use your personal information
We will use your personal information for the purposes for which we collect it. Generally, we will use your personal information in connection with conducting our business as a medical research organisation. We may use your personal information we collect for the following purposes:
- Activities related to obtaining and administering funding for research.
- To consider and assess applications for employment.
- To assess potential participants for involvement in research activities and in connection with a participant’s involvement in that research.
- To administer our relationship with third parties, such as our contractors and agents.
- To plan, manage, review and audit our activities and processes.
- To contact you about our programs, research, education and fundraising activities. We may contact you to seek donations.
- To perform any of our other functions and activities.
We will not use an individual’s personal information for direct marketing purposes unless we are permitted to do so under the Privacy Act 1988.
You may elect to opt out of receiving communications regarding our fundraising and other activities at any time by contacting us at the contact details below.
Participation in medical research at the Walter and Eliza Hall Institute
If you participate in research that we conduct alone or with other organisations, we may also collect sensitive information (health information) about you – for example, your medical history – and/or tissue for use in our research. The other types of sensitive information we collect may include ethnic or racial origin.
This information is used to record your involvement in research activities undertaken by the Walter and Eliza Hall Institute, to process the results of research and to contact you regarding participation in future studies. All human research undertaken at the Institute is approved by the Institute’s Human Research Ethics Committee with the results of research activities presented in such a way that the identity of the research participant is protected.
Who might we disclose your personal information to?
The Walter and Eliza Hall Institute may disclose personal information to parties outside the institute for the purpose for which the information was collected or for purposes related to the operation of our business and activities, or with your consent.
We may disclose your personal information to the parties listed below:
- Other researchers or research organisations or institutions.
- Government departments, agencies or bodies.
- Organisations or people that fund research.
- Our agents, contractors and service providers – for example, providers of administrative, telecommunications, computer or other services.
If you make a donation, we may publish your name in our annual report or other Walter and Eliza Hall Institute publication, in accordance with your preferences as notified to us. While we seek to publicly recognise the generous contributions of our donors and supporters, individuals wishing to remain anonymous in our publications or at public forums should advise the Institute of this in writing.
We may also disclose personal information in other circumstances permitted under the Privacy Act 1988.
The Walter and Eliza Hall Institute may transfer your personal information to a party who is in another State or Territory of Australia. Also, occasionally, we may disclose personal information to an overseas person or organisation – for example, in relation to an application for funding or in connection with a research collaboration. If we transfer personal information to an overseas person or organisation, we will comply with the requirements of the Privacy Act 1988 that relate to overseas disclosures of personal information.
Once received, the Walter and Eliza Hall Institute takes all reasonable steps to protect the personal information it holds from misuse, interference and loss and from unauthorised access, modification or disclosure. We maintain physical security over our paper and electronic data stores and premises, such as security access systems, and computer and network security to control and limit access to our computer system, including through the use of internet firewalls, secure servers, user identifiers and passwords.
The Walter and Eliza Hall Institute will destroy or permanently de-identify personal information if we no longer need it for any purpose.
Issues concerning the use of our website
We will only collect personal information through our website if you voluntarily provide it.
The Walter and Eliza Hall Institute cannot ensure the security of any information transmitted over the internet and individuals do so at their own risk. However, once we receive a transmission, we take all reasonable steps to ensure that personal information is secure on our systems.
We may collect other non-identifying information in relation to your use of our website - such as the type of browser you use, the files you request, and the domain name and country from which you request information. This information is used to monitor and improve our website and services.
We will record your email address if you transmit it to us electronically either in an email message or via a web page form.
Access to your information
You have the right to access the personal information we hold about you and also to request that we correct it. We aim to ensure that all personal information that we hold is accurate, complete and up-to-date. If you wish to request access to, or correction of, your personal information please contact us at the contact details below.
In some circumstances, we may not permit an individual access to some or all of their personal information or may not agree to correct their personal information. In these cases, we will provide reasons for our decision.
If you have a complaint about the manner in which the Walter and Eliza Hall Institute has handled your personal information, please contact us at the contact details below. We will respond to your query or concern as soon as possible and will try to resolve any complaint promptly. If this is not possible, we will contact you to let you know how long we estimate it will take to resolve your concern.
C/- General Counsel (Legal)
Phone: +61 3 9345 2818
This policy was last updated on 11 March 2014.